About Cerebral Palsy
CPF – Cerebral Palsy Foundation (yourcpf.org)
Care Pathways | AACPDM – American Academy for Cerebral Palsy and Developmental Medicine
What is Cerebral Palsy? | Cerebral Palsy Research Network (cprn.org)
Texas State Agencies and Programs***
Navigate Life Texas– great website for understanding various Medicaid waiver programs and all resources for those with special needs. Also available in Spanish here.
Parent Companion Guide— A guide for Texas parents and caregivers of children with diagnosed or suspected disabilities from birth through 5 years of age.
***Texas Residents – refer to the information below for specific guidelines on being placed on interest waiting lists.
Community Living Assistance Supports Services (CLASS): http://bit.ly/2gYoZ9J
Medically Dependent Children Program (MDCP): http://bit.ly/2iPJy8v
Home and Community-based Services (HCS): http://bit.ly/2yhaqVS
Community-Based Alternatives (CBA): http://bit.ly/2zlIVKT
Deaf-Blind with Multiple Disabilities (DBMD): http://bit.ly/2zjdels
Early Childhood Intervention (ECI): http://bit.ly/2cSKa9F
Navigate Life Texas: https://www.navigatelifetexas.org/en
Disability Rights Texas (DRTx): http://www.dads.state.tx.us/tarrc
Medicaid Buy-In Program: http://bit.ly/2zSMYeb
Parent/School/Educational
Texas Parent to Parent: www.txp2p.org
Texas Education Agency: http://www.texasprojectfirst.org/
Partners Resource Network: http://prntexas.org/fact-sheets/
Vela: http://bit.ly/2ii18hz
National Center for Learning Disabilities: www.LD.org
Wheelchairs & Accessories
CPATH Equipment Closet: https://cpathtexas.org/equipment-closet/
Mount’n Mover: https://www.mountnmover.com/
Simple Armrest Bench Instructions: tinyurl.com/EasyBenches
Texas Ramps: http://www.texasramps.org/
Camps / Child Care
Camp CPals: CPATH’s weekend family camp
Texas Lions Camp: www.lionscamp.com
Camp Smiles: https://www.eastersealshouston.org/Programs/camps.html
Camp in Motion: https://www.dellchildrens.net/camp-in-motion/
Camp For All: http://campforall.org/
Camp Barnabas: www.campbarnabas.org
Camp Camp: http://www.campcamp.org/
Spectrum Sitters: https://www.spectrum-sitters.com/
Sports
Round Rock Parks Department- AIR programs
Miracle Baseball League of Austin: www.miracle.tandcsports.org
Sunshine Soccer of Central Texas: http://bit.ly/2yZ3oSO
Austin Adapted Sports: http://bit.ly/2yYMHXR
Champs Basketball – Waya Fall / Winter: https://www.waya.org/fall-champsleague
General Information
How to Teach Children About Disabilities and Inclusion: https://onlinegrad.baylor.edu/resources/teaching-children-disabilities-inclusion/
Guide to Trade School For People with Disabilities – https://primeweld.com/blogs/news/disability-guide-to-trade-school
Vocational Training for Adults with Special Needs
wondermoms.org
Tenants Rights and Housing Assistance for the Disabled
Managing Your Child’s Transition to Adulthood
Transition to Adulthood: Home Remodeling for Young Adults with Special Needs
Special Needs Checklist: How Disability-Friendly is Your City?
Books
Bookshare: www.bookshare.org
Learning Ally: www.learningally.org
Out of My Mind by Sharon Draper
Susan Laughs by Jeanne Willis
A Rainbow of Friends by P. K. Hallinan
Wonder by R. J. Palacio
Blogs
Colorful Journey of Hope – http://colorfuljourneyofhope.com/blog/
Adaptive Driving
St. David’s Rehab: http://bit.ly/2gPZzHt
Adaptive Biking
Freedom Concepts: www.freedomconcepts.com
Rifton: www.rifton.com/products/special-needs-tricycles/adaptive-tricycles
AmBUCS: http://www.capitalcityambucs.org/
Apps
Co:Writer: word prediction, text to speech, can share or print
JotNot Scanner Pro: takes pictures and turns into PDF
Abilipad: custom keyboards and adaptive notepads, word prediction, text to speech
***Texas Medicaid Waivers
A Medicaid waiver allows the state to assist individuals and provide some long-term services to those with disabilities or elderly citizens who are eligible for Medicaid. Medicaid waivers override certain rules for how Medicaid funding can be used. If an individual meets eligibility requirements, they can receive services they need in their own homes or other community settings, instead of having to go into a nursing facility or institution. You may apply and/or qualify for both Medicaid benefits, as well as Medicaid Waiver programs. In Texas, there are several different waiver programs that offer a broad range of home and community-based services to people with disabilities and elderly citizens. There are different rules and funding amounts for each of the different waivers.
Some can take up to 10 years for your child to come to the top. It is important to call the numbers below and get placed on the interest lists.
- Community Living Assistance and Support Services (CLASS)
- Deaf-Blind with Multiple Disabilities (don’t add a name if it doesn’t apply or is not a possibility of becoming a future diagnosis)
- Home and Community-based Services (HCS)
- Medically Dependent Children Program (MDCP)
- Texas Home Living
Who do I call to get my child on the above lists?
- Department Name: Texas Department of Aging & Disability Services (DADS)
Waiver(s) Available: CBA, CLASS, DBMD, and MDCP
Phone: (877) 438-5658 or 2-1-1 - Department Name: Mental Retardation Authority (MRA)
Waiver(s) Available: HCS and TxHmL
Phone: (877) 283-2121 or 2-1-1 - Department Name: Texas Health and Human Services Commission
Waiver(s) Available: Medicaid Application
Phone: 2-1-1