About Cerebral Palsy

 

CPF – Cerebral Palsy Foundation (yourcpf.org)

Care Pathways | AACPDM – American Academy for Cerebral Palsy and Developmental Medicine

What is Cerebral Palsy? | Cerebral Palsy Research Network (cprn.org)

Texas State Agencies and Programs***

Navigate Life Texas– great website for understanding various Medicaid waiver programs and all resources for those with special needs. Also available in Spanish here.

Parent Companion Guide—  A guide for Texas parents and caregivers of children with diagnosed or suspected disabilities from birth through 5 years of age.

***Texas Residents – refer to the information below for specific guidelines on being placed on interest waiting lists.

Community Living Assistance Supports Services (CLASS): http://bit.ly/2gYoZ9J

Medically Dependent Children Program (MDCP): http://bit.ly/2iPJy8v

Home and Community-based Services (HCS): http://bit.ly/2yhaqVS

Community-Based Alternatives (CBA): http://bit.ly/2zlIVKT

Deaf-Blind with Multiple Disabilities (DBMD): http://bit.ly/2zjdels

Early Childhood Intervention (ECI): http://bit.ly/2cSKa9F

Navigate Life Texas: https://www.navigatelifetexas.org/en

Disability Rights Texas (DRTx): http://www.dads.state.tx.us/tarrc

Medicaid Buy-In Program: http://bit.ly/2zSMYeb

Parent/School/Educational

Texas Parent to Parent: www.txp2p.org
Texas Education Agency: http://www.texasprojectfirst.org/
Partners Resource Network: http://prntexas.org/fact-sheets/
Vela: http://bit.ly/2ii18hz
National Center for Learning Disabilities: www.LD.org

Wheelchairs & Accessories

CPATH Equipment Closet: https://cpathtexas.org/equipment-closet/
Mount’n Mover: https://www.mountnmover.com/
Simple Armrest Bench Instructions:  tinyurl.com/EasyBenches

Texas Ramps: http://www.texasramps.org/

Camps / Child Care

Austin Independent School District (AISD): 2019 Day Camps Guide FINAL
Austin Independent School District (AISD): 2019 Day Camps Guide SPANISH

Camp CPals: CPATH’s weekend family camp
Texas Lions Camp:  www.lionscamp.com
Camp Smiles: https://www.eastersealshouston.org/Programs/camps.html
Camp in Motion: https://www.dellchildrens.net/camp-in-motion/
Camp For All: http://campforall.org/
Camp Barnabas:  www.campbarnabas.org
Camp Camp: http://www.campcamp.org/

Spectrum Sitters: https://www.spectrum-sitters.com/

Sports

Round Rock Parks Department- AIR programs

1 World Karate

Miracle Baseball League of Austin: www.miracle.tandcsports.org
Sunshine Soccer of Central Texas: http://bit.ly/2yZ3oSO
Austin Adapted Sports: http://bit.ly/2yYMHXR
Champs Basketball – Waya Fall / Winter: https://www.waya.org/fall-champsleague

General Information

How to Teach Children About Disabilities and Inclusion:  https://onlinegrad.baylor.edu/resources/teaching-children-disabilities-inclusion/
Guide to Trade School For People with Disabilities – https://primeweld.com/blogs/news/disability-guide-to-trade-school
Vocational Training for Adults with Special Needs
wondermoms.org
Tenants Rights and Housing Assistance for the Disabled
Managing Your Child’s Transition to Adulthood
Transition to Adulthood: Home Remodeling for Young Adults with Special Needs
Special Needs Checklist: How Disability-Friendly is Your City?

Books

Bookshare: www.bookshare.org
Learning Ally:  www.learningally.org
Out of My Mind by Sharon Draper
Susan Laughs
by Jeanne Willis
A Rainbow of Friends by P. K. Hallinan
Wonder by R. J. Palacio

Blogs

Colorful Journey of Hope – http://colorfuljourneyofhope.com/blog/

Adaptive Driving

St. David’s Rehab: http://bit.ly/2gPZzHt

Adaptive Biking

Freedom Concepts: www.freedomconcepts.com
Rifton: www.rifton.com/products/special-needs-tricycles/adaptive-tricycles
AmBUCS: http://www.capitalcityambucs.org/

Apps

Co:Writer: word prediction, text to speech, can share or print
JotNot Scanner Pro: takes pictures and turns into PDF
Abilipad:  custom keyboards and adaptive notepads, word prediction, text to speech


***Texas Medicaid Waivers

A Medicaid waiver allows the state to assist individuals and provide some long-term services to those with disabilities or elderly citizens who are eligible for Medicaid. Medicaid waivers override certain rules for how Medicaid funding can be used. If an individual meets eligibility requirements, they can receive services they need in their own homes or other community settings, instead of having to go into a nursing facility or institution. You may apply and/or qualify for both Medicaid benefits, as well as Medicaid Waiver programs. In Texas, there are several different waiver programs that offer a broad range of home and community-based services to people with disabilities and elderly citizens. There are different rules and funding amounts for each of the different waivers.

Some can take up to 10 years for your child to come to the top.   It is important to call the numbers below and get placed on the interest lists.

  • Community Living Assistance and Support Services (CLASS)
  • Deaf-Blind with Multiple Disabilities (don’t add a name if it doesn’t apply or is not a possibility of becoming a future diagnosis)
  • Home and Community-based Services (HCS)
  • Medically Dependent Children Program (MDCP)
  • Texas Home Living

Who do I call to get my child on the above lists?

  1. Department Name: Texas Department of Aging & Disability Services (DADS)
    Waiver(s) Available: CBA, CLASS, DBMD, and MDCP
    Phone: (877) 438-5658 or 2-1-1
  2. Department Name: Mental Retardation Authority (MRA)
    Waiver(s) Available: HCS and TxHmL
    Phone: (877) 283-2121 or 2-1-1
  3. Department Name: Texas Health and Human Services Commission
    Waiver(s) Available: Medicaid Application
    Phone: 2-1-1